Relaxation Exercises and Education for Sickle Cell Disease: https://www.youtube.com/@thecomfortabilityforsickle7602/videos?view=0&sort=dd&shelf_id=0 Watch fun videos in which you get to meet people who have sickle cell disease and hear the ways they have learned to help their pain and stress. Meet Devin McCourty, a New England Patriots football player talk about sickle cell disease. Also, hear from a hematologist, Dr. Matthew Heaney, and a psychologist, Dr. Rachael Coakley, about ways to stay healthy and help you with sickle cell pain.
Tackle Sickle Cell: www.tacklesicklecell.org A fun and educational website sponsored by Devin and Jason McCourty to raise awareness and support funding for sickle cell research and education.
The Sickle Cell Disease Association of America: www.sicklecelldisease.org An excellent resource for sickle cell education and for finding local programs, activities and advocacy opportunities in your area.
The Sickle Cell Information Center: www.scinfo.org This site provides patient and professional education, news, research updates and sickle cell resources.
National Institute for Children’s Health Quality: https://nichq.org/ The mission of this organization is to work with providers and families to improve coordinated care for patients. This website has many helpful video and downloadable resources, especially in regards to the transition from pediatric to adult care.
Teens Health from Nemours: kidshealth.org/en/teens/sickle-cell-anemia.html A website for kids and teens that provides easy to understand information about managing sickle cell disease. The information on this site is available in audio format and in Spanish.
Serious Fun Network Children’s Network: www.seriousfunnetwork.org/home This site provides patient and professional education, news, research updates and sickle cell resources.